This is breaking news in the NY Times. Cuomo Agrees to Plan for Housing Mentally Ill, Ending Legal Battle
This is an agreement to ´right´the wrongs committed by many NYS adult homes providers and that NYS judge that made that appalling decision in the case DIA v NYS-OMH etc in April last year. This agreement is a step forwards towards moving the people in those ‘homes’ of horrors to the community.
Am I personally happy and satisfied with this? I don’t go jumping with joy without first taking a quick glance to the text of the so-call ‘agreements’ and new laws to ‘protect’ people with disabilities of all kind. Why? Because one thing are the sound bites we get in the media about how great a new law is, another is the TEXT and the IMPLEMENTATION.
Now, with this agreement, everybody relaxes and forget about it. Just like with the Justice Center, we will assume that the government is looking to protect us. Nothing happens unless you threaten the government. Not even this agreement, the result of years of court battle with the state.
OK. I will NOT sour your joy. IT IS A STEP in the right direction.
I will tell you where we must put caution in this agreement. You can read the agreement on your own here courtesy of Judge David L. Bazelon Center for Mental Health.
Suffice it say that the agreement WARNS those Adult Homes providers previously caught abusing the mentally ill that they should not interfere with their residents in this process of moving them out, or they ‘will be punished’. Adult Homes are going to lose $$ and they want to keep their houses of horror filled. That there is a NEED for a warning to them should tell you a LOT. (See page 8, part 4 in the agreement.)
First quick notes:
From “definitions” (pages 4 and 5):
1. You have to be 65 years old or under to qualify for the benefit of the agreement.
2. The agreement MAY take 4 or 5 years to be completed. If you are 62 now and you HAVEN’T been relocated within the next two years, you may not qualify anymore. Or at least the agreement doesn’t clarify that. This is a question that those of you in Adult Homes (AH) MUST ask the people involved in this agreement.
3. As usual, the agreement applies to AH that are LICENSED, per Social Services Law Article 7. If you are in an unlicensed one, you may have problem qualifying for the agreement. YOU MUST SEEK CLARIFICATION ABOUT THIS.
4. AH with LESS than 80 beds do not qualify for the agreement. It (“transitional AH”) has to have 80+ beds AND a “mental health census” of 25%. If you are in a small AH, you may want to confirm that it qualifies for the agreement.
5. “Impacted” AH are those in NYC with 120 beds or more AND a mental health “census” of 25% of the population of the AH.
MENTAL HEALTH STATUS: Not so fast baby.
To qualify, a mental health evaluation to measure your level of functioning will be implemented. This is where the ENACTING may go astray, leaving people who are not dysfunctional ‘enough’.
1. Must have a mental diagnosis based on THE MOST RECENT DSM book. I would say, tread with caution here.
- ‘what if I my diagnosis is not in the book anymore? They removed some and added new ones.’ See my point?
2. Excluded from the agreement are people with developmental disabilities, mental illness due to brain damage, and “SOCIAL CONDITION”. I’m as lost as you are on that last one. Looks like a loophole to keep people in. Must check the DSM bible for clarification.
3. “Must have a SUBSTANTIAL FUNCTIONAL disability WITHIN the PREVIOUS 24 MONTHS before the date of the agreement.” Do you know what a “substantial” functioning disability means? I suggest you look it up if you want to get out of there. Plus, it is ‘within’ the last 24 months of the agreement. Better check it out how that may affect you too.
4. Who will determine your disability, your substantial functional levels that will ALLOW them to put you in a supported housing?
- a determination by SSA that you receive benefits due to mental illness will not be enough.
- A “Health Home agency” AND a MLTCP (managed long-term care Plan) will be in charge of the process of evaluating your qualification for the agreement. Even if SSA says you are disabled, these people may determine that you are not ‘substantially‘ dysfunctional and may disqualify you. See #5, subsections (b) i and ii on page 5.
So don’t assume that you automatically qualify to be relocated out of the AH just because you are there.
“PERSON-CENTERED PLAN”. Where have I heard that before??
Right, those of us in Supported Housing (SH) are struggling with “person centered support”. Welcome to our struggle. But, I will NOT deny that chances are that, if you make it to a SH, you may be better off than there. Just don’t come here thinking ‘wow, I made it. I’m out of danger’. Nope.
Now, I couldn’t find the dates for the agreement. If any of you find that info, please, forward it. It’s important to you, if you are in one of those homes, because of the transition schedules. You don’t want to be left out.
My take about this:
1. This is a good step forward.
2. ALL THESE PEOPLE who are coming to the community are going to face the reality of what we have here: SH is over 80% unlicensed. This means, you have NO LEGAL PROTECTIONS there. People centered treatment does not exist. It’s a craps shoot.
3. the ‘culture of abuse’ that exists in those AH will relocate in the community, following our new ‘freed’ peers, with those workers who will get jobs from there to here.
4. TODAY MORE THAN EVER we need to ORGANIZE our people. For ‘people centered ‘ services we NEED TO BUILD THOSE CABs.
5. Never has the state given ANYTHING without a fight. The NYS WILL BE crying ‘BROKE’ to avoid completing this agreement and creating housing for them. If you want to trust them 100% despite what history shows us, fine.
This is my first reaction to the agreement. Sorry if I sour your joy. I doubt it, though.
CONGRATULATIONS TO THE FORMER DIA.
Welcome And good luck for those of you moving here to the community ‘with us’.
Like we used to say in the ’60s: the struggle continues.